November is Worldwide Bereaved Siblings Month

Parents of children with serious illnesses face many challenges supporting their child through treatment and navigating the eventual outcome of the illness. If the family has more than one child, the parents also find themselves supporting the siblings as they experience their brother or sister’s illness, and sometimes, their death.

The authors of Magination Press’s The Gift of Gerbert’s Feathers, Dr. Meaghann Weaver and Dr. Lori Wiener offer these insights and tips for supporting siblings of seriously ill children:

When a child is diagnosed with a serious illness, everyone in the family is impacted. It can be especially difficult for brothers and sisters whose pain and suffering can feel invisible compared to what is happening to their ill sibling. Some siblings feel that their own needs, wants, and desires are not being valued as highly as those of their ill brother or sister. They can struggle trying to balance their love for their family and tremendous worry for their sibling with feelings of jealousy, anger, or frustration.

Sometimes siblings secretly worry that they caused the illness due to something they thought, said, or did. It is important that the sibling is reassured that the sickness is not their fault. Sometimes siblings feel guilty for being healthy when their brother or sister is sick. Others may feel guilty for being jealous of the attention their sick sibling is getting from parents, grandparents, neighbors, and others. These feelings are often magnified if their siblings die from disease. They should be reassured that these are normal emotions, and that it’s not their fault.

To support a child who has lost a brother or sister, try these ideas:

  • Allow children to speak openly and ask questions about their loss
  • Provide children with age-appropriate information about understandable and healthy emotional reactions to grief
  • Facilitate a consistent routine including school attendance and home routines like regular family meals and bedtime
  • Encourage children to maintain a relationship with their sibling through the practice of continuing bonds such as  talking about memories, looking at pictures, creating a memory box, or visiting favorite shared places

These tips are partially excerpted from the Guide for Parents & Caregivers in Magination Press Book, The Gift of Gerbert’s Feathers, by Meaghann Weaver, MD, MPH, FAAP, and Lori Wiener, PhD, DCSW, to be published in February 2020.

by Meaghann Weaver, MD, MPH, FAAP

This Article's Author

Meaghann Weaver, MD, MPH, FAAP, is a pediatric oncologist and Chief of the Division of Palliative Care at the Children's Hospital and Medical Center in Omaha, Nebraska. She works with a wonderful interdisciplinary Hand in Hand team which strives to foster the strengths and graces of children and families in the Heartland. Dr. Weaver's favorite life moments are spent painting, dancing, cooking, and gardening with her amazing daughter, Bravery. Dr. Weaver dreams of one day returning to Africa with her family.
by Lori Wiener, PhD, DCSW

This Article's Author

Lori Wiener, PhD, DCSW, is co-director of the Behavioral Science Core and Head of the Psychosocial Support and Research Program at the pediatric oncology branch of the National Cancer Institute. As both a clinician and behavioral scientist, Dr. Wiener has dedicated her career to applying what she has learned from her work with seriously ill children and their families to create new therapeutic, communication, and educational tools.' She lives in Annapolis, Maryland with her family and several animals, including a pup named Tessa, a rescue cat named Tupelo, and a pond filled with goldfish, koi and noisy frogs. One of Dr. Wiener's favorite pastimes is photographing the migration of snow geese.

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